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Understanding RP
Plain-language guides on diagnosis, progression and what to expect.
Coming soon
Resource Center
A growing library of guides, directories and briefings — co-created with patients, families, clinicians and researchers.
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Plain-language guides on diagnosis, progression and what to expect.
Coming soon
Practical guidance on mobility, daily life and independence.
Coming soon
Tools, apps and devices that help with reading, navigation and work.
Coming soon
Directory of clinicians, hospitals and services across counties.
Coming soon
Inclusive learning, scholarships and pathways to employment.
Coming soon
Disability rights, social protection and how to advocate for them.
Coming soon
Accessibility first
Our resources will be available in screen-reader friendly formats, large text, and audio.